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PCD Foundation | Primary Ciliary Dyskinesia

Become a PCD Clinical Center

An Exciting Opportunity

Thank you for your interest in becoming a Primary Ciliary Dyskinesia (PCD) Clinical Center. This is the first step in joining a dynamic initiative that presents significant clinical and scientific opportunities—with the potential to make a lasting impact on patient care and research.

By becoming a PCD Clinical Center, you will play a pivotal role in identifying and supporting individuals with this underdiagnosed disease. You will help expand access to specialized care, contribute to the growing body of knowledge on PCD, and advance our shared mission to improve patient outcomes.

This is truly a “ground-floor” opportunity. We expect measured but steady expansion—adding a few new sites annually, accelerating as diagnostic tools improve and resources grow. While we understand that existing PCD patient volumes may be limited due to diagnostic challenges, experience shows that if we build it, they will come. We’ve seen consistent growth in patient populations at newly established centers, even in areas with initially low numbers.

For that reason, our selection process prioritizes:

  • Strong institutional support
  • A commitment to the program’s mission
  • Willingness to collaborate as part of a sustainable, nationwide network

Currently, applications are open by invitation only. If you have questions, please contact the PCD Foundation at info@pcdfoundation.org.

Rationale & Goals of the PCDF Clinical and Research Center Network (PCDF-CRCN)

One of the PCD Foundation’s core objectives is to ensure equitable access to high-quality diagnostic and clinical care for all individuals with PCD. As our understanding of PCD deepens, and standards of care continue to evolve, now is the time to build a robust, coordinated network of clinical centers with PCD-specific expertise.

Ultimately, our vision is to find a cure for PCD. Reaching that goal will require sustained investment in research and, crucially, participation from as many affected individuals as possible. To support this, the Foundation—along with international collaborators—is building a network of PCD Centers to serve as regional hubs for diagnosis, treatment, research, and registry enrollment.

The PCDF-CRCN expands on the foundation laid by the Genetic Disorders of Mucociliary Clearance Consortium (GDMCC), which many patients and providers in North America already know. GDMCC sites will continue their research efforts and serve as referral centers for both diagnostic and clinical services under the PCDF-CRCN. With nearly a decade of experience operating as a collaborative research network, these sites will also provide mentorship and support for newly designated PCD Centers.