Do you or a loved one have PCD? Here is your first step toward getting involved in the PCD research community. PCDF Connect is open to anyone with PCD: regardless of whether your diagnosis is confirmed, where you receive care, whether you are already enrolled in the PCDF Research Registry, or are involved in research at a PCD Foundation Clinical and Research Network Center.
Enroll NowEvery person with PCD has a role to play in
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Every person with PCD has a role to play in
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We look forward to seeing you at An Evening to
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Each year in October we come together for PCD Awareness
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There are several opportunities coming up in the very near
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Why do challenging lung infections occur in PCD? Primary Ciliary Dyskinesia
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National Patient Experience Week April 29, 2024- May 3rd, 2024. We
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Learn more about the importance of research, including the crucial
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By Michele Manion, Oct 23, 2017 PCD diagnosis continues to
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The more we find out, the more we can share, helping people learn and giving current and future PCD patients—like Max—the opportunity for a better life."Cindy
My hope for the girls and all those living with PCD is to breathe deeply, be resilient and live a life without limits.”Adriana
I am so much more than just a person with PCD. I am determined to make a difference in the lives of others.”Amy
