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X-WR-CALDESC:Events for PCD Foundation
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BEGIN:VEVENT
DTSTART;TZID=UTC:20261016T183000
DTEND;TZID=UTC:20261016T223000
DTSTAMP:20261023T221737
CREATED:20260423T181205Z
LAST-MODIFIED:20261007T180432Z
UID:937-1792175400-1792189800@www.pcdfoundation.org
SUMMARY:An Evening to Ignite Hope
DESCRIPTION:We look forward to seeing you at An Evening to Ignite Hope! \n\n\n\nPCD Foundation: An Evening to Ignite HopeFriday\, October 16\, 2026Pepper Family Wildlife Center at Lincoln Park ZooChicago\, Illinois 60614 \n\n\n\nIgnite Hope Now!
URL:https://www.pcdfoundation.org/event/an-evening-to-ignite-hope/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20261007T110000
DTEND;TZID=UTC:20261007T120000
DTSTAMP:20261023T221737
CREATED:20260929T143403Z
LAST-MODIFIED:20261002T210021Z
UID:1447-1791370800-1791374400@www.pcdfoundation.org
SUMMARY:The Power of Patients: PCDF Registries - Webinar
DESCRIPTION:Every person with PCD has a role to play in shaping the future of PCD research. \n\n\n\nThe PCD Foundation’s Registries give patients an opportunity to get involved\, make their voices heard\, and help researchers better understand PCD. That participation can help advance research\, inform clinical trials\, and move us toward better treatments. \n\n\n\nJoin us on October 7th at 11:00 am CT / 12:00 pm ET as Dr. Michael O’Connor (Associate Professor of Pediatrics at Vanderbilt University and Medical Director for the PCDF Registry) and Michele Manion (President and Executive Director at PCDF) will provide an overview of our PCDF Connect and Research Registries and the benefits of tracking patients with PCD. Sigrid Almeida (Research Coordinator at Connecticut Children’s) will walk through considerations and approaches to getting enrolled. \n\n\n\nRegister here: https://us02web.zoom.us/webinar/register/WN_BPcK5ZKGR_2QLMrehZNZaA#/registration \n\n\n\nLearn more about the PCDF Registries here ahead of the webinar: \n\n\n\n\nPCDF Connect Registry: https://www.pcdfoundation.org/pcdfconnect/\n\n\n\nResearch Registry: https://www.pcdfoundation.org/registry/
URL:https://www.pcdfoundation.org/event/the-power-of-patients-pcdf-registries-webinar/
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