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X-WR-CALNAME:PCD Foundation
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X-WR-CALDESC:Events for PCD Foundation
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DTSTART;TZID=UTC:20261007T110000
DTEND;TZID=UTC:20261007T120000
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CREATED:20260929T143403Z
LAST-MODIFIED:20261002T210021Z
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SUMMARY:The Power of Patients: PCDF Registries - Webinar
DESCRIPTION:Every person with PCD has a role to play in shaping the future of PCD research. \n\n\n\nThe PCD Foundation’s Registries give patients an opportunity to get involved\, make their voices heard\, and help researchers better understand PCD. That participation can help advance research\, inform clinical trials\, and move us toward better treatments. \n\n\n\nJoin us on October 7th at 11:00 am CT / 12:00 pm ET as Dr. Michael O’Connor (Associate Professor of Pediatrics at Vanderbilt University and Medical Director for the PCDF Registry) and Michele Manion (President and Executive Director at PCDF) will provide an overview of our PCDF Connect and Research Registries and the benefits of tracking patients with PCD. Sigrid Almeida (Research Coordinator at Connecticut Children’s) will walk through considerations and approaches to getting enrolled. \n\n\n\nRegister here: https://us02web.zoom.us/webinar/register/WN_BPcK5ZKGR_2QLMrehZNZaA#/registration \n\n\n\nLearn more about the PCDF Registries here ahead of the webinar: \n\n\n\n\nPCDF Connect Registry: https://www.pcdfoundation.org/pcdfconnect/\n\n\n\nResearch Registry: https://www.pcdfoundation.org/registry/
URL:https://www.pcdfoundation.org/event/the-power-of-patients-pcdf-registries-webinar/
ATTACH;FMTTYPE=image/png:https://www.pcdfoundation.org/wp-content/uploads/2026/09/PCDF-Registries-Graphic.png
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