Long-Term Outlook

PCD affects individuals from birth and can severely impact quality of life.

The severity and progression of the disease vary—some people experience serious lung damage early, while others live into their 50s, 60s, or even 70s. However, the condition is progressive and significantly shortens expected lifespan compared to the general population.

To improve care and research, the PCD Foundation created a PCD Clinical Center Network. These centers offer advanced diagnostic tools and treatment, and provide a pathway to clinical trials that aim to find better therapies—and eventually, a cure. Learn more about the Clinical Center Network.