Phoenix, AZ Dec 12, 2006 Statistically, most (in fact nearly all) non-profit organizations receive 80% of their funding from private individuals. This can be a financial burden when the group being represented is very small. PCD affects relatively few people (approximately 19,000 in the U.S), yet the impact of research done in PCD could potentially benefit millions. The leadership of the PCD Foundation is committed to expanding the progress being made in PCD research. As a group comprised primarily of patients and parents, however, we are also aware of the limited resources of our core supporters. Many of you have recently received the PCD Foundation Annual Donation Letter for 2006 in the mail. We are asking for your assistance to address the problem of our limited contact list. Specifically, we are asking for your help with getting our 2006 Annual Letter distributed to a wider audience by identifying 10-20 family members or friends you think might be willing to support the PCD Foundation with a tax-deductible donation. The links below are .pdf files of the annual letter and examples of personal notes that others have used with the annual letter to put a personal face on PCD.

If you prefer, the PCD Foundation can send letters on your behalf if you provide the addresses. If you have not received your personal copy of the Annual Letter yet and you would like to be added to the mailing list, please provide an updated mailing address. Thanks for all of your support this year! We look forward to a productive 2007 for PCD. Please contact the PCD Foundation with any questions about the Annual Letter campaign.

Click here to open the Annual Letter 06 PDF.

Click here to open another sample personal letter.

Click here to open another sample personal letter.

Learn more about the PCD Foundation

The PCD (Primary Ciliary Dyskinesia) Foundation seeks to promote research, increase public awareness, and provide information and support services for individuals with inherited ciliary disorders and their caregivers.