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PCD Educational Events
Summer, 2007
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Please Join Us
The Primary Ciliary
Dyskinesia (PCD) Foundation is pleased
to invite you to two upcoming
educational events: The fifth-annual PCD
Foundation Family Education Weekend in
Durham, North Carolina (August 10-12,
2007) and a full-day regional education
meeting in Phoenix, Arizona (September
8, 2007).
PCD clinical and
research experts will be speaking at
both events covering topics including
PCD genetics, ciliary ultrastructure and
function, diagnostic dilemmas in PCD,
heterotaxy and congenital heart disease
in PCD, nasal nitric oxide measurement
in PCD, current best practices for
treatment of PCD and much more. Event
details below.
Sincerely,
Michele Manion |
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Fifth-Annual Family Education Weekend
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August 10-12, 2007, Durham, North Carolina
The relaxed setting of this weekend PCD
retreat allows plenty of time for
peer-to-peer support, as well as providing a
safe environment to learn about PCD and ask
questions of PCD medical professionals.
This annual educational meeting is the most
eagerly anticipated event on the PCD
calendar.
Who Should Attend?
Families, caregivers, patients,
physicians and healthcare team members who
are interested in learning more about PCD.
Event Details:
Marriott
Research Triangle Park
4700
Guardian Drive
Durham,
North Carolina 27703
Phone: 1-800-228-9290 (hotel Direct:
1-919-941-6200)
Conference room rate $89.00 + tax/night
Conference rooms available for booking now
Family registration fee $120/Individual
registration fee: $90*
(Registration covers all sessions and most
meals for the weekend)
Preliminary Program (speakers are
confirmed--topics and order may change):
Session 1: Primary Ciliary Dyskinesia
Defined: Making the Diagnosis
- PCD Research & Genetics, Michael
Knowles, MD
- Ciliary Ultrastructure & Function,
John Carson, PhD
- Nasal Nitric Oxide in PCD Diagnosis,
TBD
Group Lunch
Session 2: Treating the Clinical
Consequences of PCD
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Phoenix PCD Education Meeting |
September 8,
2007
This meeting is the first in a new PCD
Foundation regional education program aimed
at reaching healthcare professionals and
patients in discrete regions of North
America. The PCD community is small and
geographically dispersed, making it
difficult for patients and healthcare
providers to access up-to-date information
on PCD research and treatment. The goal of
this program is to bring the experts to the
community and identify regional experts.
Regional education meetings will be shorter
(one day), with a more data-intense program
suitable for healthcare professionals.
However, patients and families are also very
welcome and encouraged to attend. As in
all our educational programs, ample time
will be provided for question and answer
sessions.
Who Should Attend?
Physicians, healthcare team members,
patients, families, caregivers and
interested individuals.
Event Details:
Park Plaza Hotel
Family
registration: $40/Individual registration:
$25*
(Registration covers all sessions and
Saturday lunch)
2641 West Union Hills Drive
Phoenix, Arizona 85027
(602)
978-2222
Conference
room rate: $79.00 + tax/night
Conference
rooms available for booking starting July
15, 2007
Preliminary
Program (speakers are confirmed--topics and
order may change):
Morning Session: Primary Ciliary Dyskinesia
Defined: Making the Diagnosis
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PCD research and genetics-Michael
Knowles, MD
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Ciliary ultrastructure-John Carson, PhD
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The role of nasal nitric oxide in
diagnosis-TBD
Group
Lunch
Afternoon
Session: Treating the Clinical Consequences
of PCD
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PCD in the southwest region-Paul
Stillwell, MD
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End-stage lung disease and transplant-Peadar
Noone, MD
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The GDMCC study-Scott Sagel, MD
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New findings in PCD: What do they
mean?-Michael Knowles, MD
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PCD Foundation
29252 N. 22nd Lane Phoenix, Arizona 85085
623-215-2032
www.pcdfoundation.org
info@pcdfoundation.org
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For more information and preliminary programs,
please visit the PCD Foundation website at
www.pcdfoundation.org or call Michele Manion
at the PCD Foundation 623-215-2032.
*The PCD
Foundation operates with a very limited budget.
However, it is our desire that everyone be able
to attend educational events. If the
registration fee poses a financial hardship,
please contact the PCD Foundation at
623-215-2032 or
info@pcdfoundation.org
to discuss registration fee options.
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