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PCD Foundation |
Press Release |
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PCD Family Education Weekend Registration Now Open
Event to be held August 10-12 in Durham, NC
Phoenix, AZ - May 16, 2007- Registration
forms for the 5th annual PCD Family Education
Weekend are now available on the PCD Foundation
website. The forms can be accessed from the
"News and Events" button or from the link above
the scrolling newsbar at the bottom of the
screen.
Family Education Weekend is an excellent
opportunity to meet other families while
learning the latest about PCD diagnosis and
treatment from top experts in field.
Please contact Lynn Ehrne at the PCD Foundation
(585-621-8915 or linnie1@frontiernet.net) if you
have any questions about this event or would
like a hard copy registration form.
Hope to see you there!
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PCD Foundation Website Blog
Do you ever wonder what is going on in PCD
research? Would you like to know how to get
more involved in fundraising or educational
activities? Check out the PCD Foundation Blog
on the first page of the website (www.pcdfoundation.org).
Frequent updates from the Research, Education
and Fundraising committees will be posted, along
with patient stories and experiences. The blog
can be accessed on the first page of the
website, upper right hand corner.
If you would like to post your story, please
contact the PCD Foundation for details on
submission requirements.
We'd love to
share your story!
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About The PCD Foundation
The PCD Foundation is a 501(c)(3) tax-exempt
organization dedicated to research, advocacy and
support for individuals affected by inherited
disorders of cilia and their caregivers.
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For More Information Contact Michele
Manion at:
The PCD Foundation
29252 N. 22nd Lane
Phoenix, Arizona 85085
623-215-2032
www.pcdfoundation.org
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