PCD Foundation Announces New Online Patient
Forum
On PCD Foundation Website
The PCD Foundation is pleased to announce the
addition of a patient forum to our website! The
PCDF Forum can be accessed from our homepage at
http://www.pcdfoundation.org/ by clicking
the "Patient Forum" button on the lower left
hand side of the page.
Like other online patient forums, the PCDF Forum
is a peer-to-peer communication tool to ask
questions and share information and support. The
PCDF Forum is not meant to replace existing
patient support forums, but to provide an
additional option for PCD community members
looking for a more structured format focused on
education and information.
To aid the community with staying on topic, the
forum is divided into four main categories: PCD
Diagnosis; PCD Clinical Management; PCD Life
Management and PCD Misc. & Resources. Each
category is further divided into individual
topic/forums related to that category. There
are locked, permanent informational posts in
some of the individual topic/forums that are
there for reference. Posters can reply to
existing topic/forums or can request the
addition of a new topic/forum from the
administrator.
Important Note About Registration:
Registration for the PCDF is required. After
you register for the forum you will receive two
email notices from
noresponse@websitetoolbox.com before you
can use the forum. The first notice will
include a link which you need to "click" to
confirm your email address. Using this link
verifies that you received the email and marks
your registration "email confirmed". Note that
when you click the link you will be taken to the
login screen for the forum however you will not
be able to login yet.
A second notice will go out after a moderator
reviews and approves your registration. The
review is to verify that the email was confirmed
and that you have agreed to abide by the
Terms&Conditions and Forum Guidelines. You may
now access the forum by clicking the link in the
email or going to our website,
www.pcdfoundation.org, and clicking the
forum link there.
We are excited about this
new addition to the PCDF website and hope you
will join us in this new endeavor. You can
access the forum from this
link.