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PCD at Work
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Many people with PCD pursue fulfilling careers and are able to support themselves through employment.  Some are not, however and the chronic infections and daily therapies required to maintain health in PCD can make full-time employment difficult to manage.  As PCD lung disease progresses it may be necessary to consider disability.  Parents of children with PCD can experience excessive missed work days for issues related to their children’s health, as well.

Social Security Insurance (SSI) and/or Social Security Disability (SSD) payments may be options for individuals who are experiencing difficulty with employment due to health-related disability—either their own or their child’s. SSI/SSD are federal programs that are administered at a regional level, so program eligibility can vary between regions.  

The American’s with Disabilities Act (ADA) provides limited protection for Americans who need ‘reasonable accommodation’ in the workplace.  In certain circumstances, PCD patients and parents successfully used the legal remedies available in the ADA to solve workplace problems.

The social work department of the hospital or clinical center where PCD care is provided is a good place to start for more information on these programs.  Additionally, this link to the Social Security Administration page provides detailed program information and referral services: http://www.ssa.gov/