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Improving quality of life or finding a cure for PCD will not happen without individuals who are dedicated to the fight. Join us!
Board of Directors
Officers
|
Carey Kauffman
President
|
Michele Manion
Vice President, Executive Director, Founder
|
Lynn Ehrne
Secretary
|
Todd Truax, CMA
Treasurer |
Medical and Scientific Advisory Board
Michael R. Knowles, MD
Cystic Fibrosis/Pulmonary Research & Treatment Center
University of North Carolina, Chapel Hill
Thomas Ferkol, MD
Director, Pediatric Cystic Fibrosis Clinic
Washington University, St. Louis
Scott Sagel, MD
Pediatric Pulmonology Department
The Children’s Hospital Denver
John Carson, PhD
Department of Pediatrics
University of North Carolina, Chapel Hill
Heymut Omran, MD
Center for Children & Youth Medicine
University of Freiburg, Germany
Maimoona Zariwala, PhD
UNC Department of Pathology & Laboratory Med
University of North Carolina, Chapel Hill
Joseph Sisson, MD
Section of Pulmonary & Critical Care Med
University of Nebraska Medical Center |
Margaret Leigh, MD
Director, Cystic Fibrosis Care Center
University of North Carolina, Chapel Hill
Margaret Rosenfeld, MD
Cystic Fibrosis Clinical Center
University of Washington, Seattle
Sharon Dell, MD
Director, Respirology Department
Hospital for Sick Kids, Ontario, Canada
George Witman, PhD
UMass Medical School, Biomed Division
Cell Dynamics Group
Larry Ostrowski, PhD
Cell & Developmental Biology
UNC College of Medicine, Chapel Hill
Carlos Milla, MD
Lucile Packard Children’s Hospital
Stanford University School of Medicine
Jeff Atkinson, MD
Washington University School of Med
Pulm & Critical Care Medicine |
PCDF Committees
The PCDF has three standing committees to handle the day-to-day management of PCDF Programs (Research, Education and Advocacy & Support). We also have two ad hoc Research Committee and regional Patient Liaisons who provide personal patient outreach.
Committees developing program initiatives at board direction, making recommendations to the board and reporting progress. Board membership is not required for committee participation. If you are interested in participating in a committee, please contact us.
Committee
|
Areas of Focus
|
Members
|
| Executive |
- Compliance
- Governance
- Elections
|
- Michele Manion, Committee Chair
- John Carson, PhD
- Lynn Ehrne
- Carey Kauffman
- Todd Truax, CPA/CMA
|
| Development |
- Growth
- Fundraising
- Future direction
|
- Carey Kauffman, Committee Chair
- Lori Ondos, National Fundraising Chair
- Michele Manion
|
| Education |
- Events
- Communication
- Website
- Newsletter
|
- Lynn Ehrne, Committee Chair
- John Carson, PhD
- Michele Manion
|
Research
(ad hoc) |
- Research Priorities
- Research Summaries
- Grantmaking
|
- For more information, please contact John Carson, PhD
|
Patient Liaisons
Patient Liaisons provide support and education for patients and families in their local communities. These individuals who provide a helping hand and listening ear are invaluable to making a difference each and every day. We’d love to see one or more in every city sooner than later. If you are interested in being a patient liaison for your local community, we’d love to hear from you.
| Southeast Region, Florida: |
Sharon Hann |
| Southeast Region, Georgia: |
Shannon Allister |
| Southeast Region, North Carolina: |
Christa Pearcy |
| Eastern Region (US), Pennsylvania: |
Lori Ondos |
| Eastern Region (US), New York: |
Lynn Ehrne |
| Eastern Region (Canada), Ontario: |
Devon Caldwell |
| Eastern Region (US), Virginia: |
Hanan Soliman |
| Central Region, Iowa: |
Tori Eastvold |
| Central Region, Minnesota: |
Meghan Blair |
| Central Region, Ohio: |
Dan Crow |
| Southwest Region: |
Rachelle Thomas |
|
