The PCD Foundation hosted a meeting for top pulmonologists in North America to share an exciting initiative to create a network of PCD Clinical Centers. This initiative is part of the our 'Path to Clinical Trials' program, which is a way to accelerate our understanding of PCD, develop standards for diagnosis and treatment and ensure access to better therapies through clinical trials.

Get geared up! October is PCD Awareness Month

Consider the following:

• Approximately 25,000 children and adults have PCD in the United States, but only 400 know it.
• Most people have never heard of PCD because it's 'rare'; however, cystic fibrosis (CF) is also 'rare' and most anyone knows exactly what it is!
• Most doctors have only vague recollections of PCD/Kartageners from medical school and are not up to date on the realities of the disease.
• The few treatments we have for PCD have not been tested for PCD patients.

NORD Submits Citizen’s Petition to FDA Encouraging Better Access to Drug Trials for People with Rare Disorders . Details on NORD website:

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Seasonal flu immunizations are now available in most communities.  Read more...

ScienceDaily (July 28, 2011) — Cilia -- tiny hair-like structures that perform feats such as clearing microscopic debris from the lungs and determining the correct location of organs during development -- move in mysterious ways. Their beating motions are synchronized to produce metachronal waves, similar in appearance to "the wave" created in large arenas when audience members use their hands to produce a pattern of movement around the entire stadium.

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