Enroll in the New PCDF Connect Registry: A Place for All Patients

Every person with PCD has a role to play in advancing PCD research. Now, there is a first step for everyone to get involved.

The PCD Foundation’s PCDF Connect Registry is a new opportunity for any individual with PCD to become part of the PCD research community, regardless of where they receive care.

The path to better treatments, and ultimately a cure for PCD, relies on patients getting involved in research. The more people with PCD who participate in registries, the more we can learn about PCD and the closer we can get to developing effective treatments and finding a cure.

PCDF Connect is not only a way for you to make your voice heard and contribute to the future of PCD, but also acts as an entry point to communications with the PCD Foundation. We will ensure that you receive all of the latest in PCD news, Foundation events, and more.

Whether you are followed at a PCD Foundation Clinical and Research Network (CRCN) center, receive care at another institution, or have never been seen at a specialized PCD center, PCDF Connect is open to you.

Learn more about PCDF Connect, including how it compares with the PCD Foundation Research Registry, here.

Ready to get involved? Join the PCDF Connect Registry today. The enrollment form takes less than 5 minutes to complete. By enrolling, you are taking a meaningful first step toward becoming part of the research community and helping shape the future of PCD.