Find a PCDF Clinical Center
Access to accurate diagnosis and high-quality care is a core priority of the PCD Foundation.
Our network of PCDF Clinical and Research Network Centers is made up of institutions with specialized expertise in primary ciliary dyskinesia (PCD). These centers are committed to providing best-in-class diagnostic testing, disease monitoring, and patient management— all driven by the Foundation’s mission to enhance outcomes and quality of life for those living with PCD.
Learn more about our clinical centers here.
Use the map below to locate a PCDF Clinical Center near you. (Pin locations are approximate.)
All information listed in the map is also repeated below in list form. You may select a state or country to find a clinical center in that area.
Alabama
Children’s of Alabama
Location: Birmingham, AL
Director/Physician: Wynton Hoover
Type: Pediatric Care
Visit
University of Alabama at Birmingham
Location: Birmingham, AL
Director/Physician: George “Marty” Solomon
Type: Adult Care
Visit
Arkansas
Arkansas Children’s Hospital
Location: Little Rock, AR
Director/Physician: Zena Ghazala
Type: Pediatric Care
Visit
California
UCSF Benioff Children’s Hospital / University of California, San Francisco
Location: San Francisco, CA
Director/Physician: Ngoc Ly; Elizabeth Gibb (Pediatric Care); Shoshana Zha (Adult Care)
Type: Pediatric Care, Adult Care
UCSF Pediatric Care • UCSF Adult Care
Stanford Children’s Health / Stanford Medicine
Location: Palo Alto & Emeryville, CA
Director/Physician: Carlos Milla (Pediatric Care); Meghan Marmor (Adult Care)
Type: Pediatric Care, Adult Care
Stanford Pediatric Care • Stanford Adult Care
Rady Children’s / UC San Diego Health
Location: San Diego, CA
Director/Physician: Kathryn Akong (Pediatric Care); Praveen Akuthota (Adult Care)
Type: Pediatric Care, Adult Care
Rady Pediatric Care • UCSD Adult Care
Children’s Hospital of Orange County
Location: Orange, CA
Director/Physician: Chana Chin
Type: Pediatric Care
Visit
Colorado
Children’s Hospital Colorado
Location: Aurora, CO
Director/Physician: Scott Sagel; Jordana Hoppe
Type: Pediatric Care
Visit
Electron Microscopy (EM) Lab Specialty
National Jewish Health
Location: Denver, CO
Director/Physician: Steven Lommatzsch
Type: Adult Care
Visit
Connecticut
Connecticut Children’s
Location: Hartford, CT
Director/Physician: Melanie Sue Collins
Type: Pediatric Care
Visit
University of Connecticut Health
Location: Hartford, CT
Director/Physician: Mark Metersky
Type: Adult Care
Visit
Georgia
Children’s Healthcare of Atlanta / Emory Healthcare
Location: Atlanta, GA
Director/Physician: Jonathan Popler; Lokesh Guglani (Pediatric Care); Colin Swenson; William “Randy” Hunt (Adult Care)
Type: Pediatric Care, Adult Care
CHOA Pediatric Care • Emory Adult Care
Illinois
Ann & Robert H. Lurie Children’s Hospital of Chicago
Location: Chicago, IL
Director/Physician: Maria Dowell; Mary Kate McIntyre, APRN-NP
Type: Pediatric Care
Visit
Indiana
Riley Hospital for Children / Indiana University Health
Location: Indianapolis, IN
Director/Physician: Evans Machogu; Ben Gaston (Pediatric Care); Cindy Brown; Brad Rosen (Adult Care)
Type: Pediatric Care, Adult Care
Riley Pediatric Care • IU Adult Care
Kansas
Children’s Mercy Hospital / Kansas University Health System
Location: Kansas City, MO/KS
Director/Physician: Hugo Escobar (Pediatric Care); Andreas Schmid; Joel Mermis (Adult Care)
Type: Pediatric Care, Adult Care
Children’s Mercy Pediatric Care • KU Adult Care
Maryland
Johns Hopkins University / Johns Hopkins Medicine
Location: Baltimore, MD
Director/Physician: Peter Mogayzel (Pediatric Care); Dan Belz (Adult Care)
Type: Pediatric Care, Adult Care
Hopkins Pediatric Care • Hopkins Adult Care
National Institutes of Health (NIH)
Location: Bethesda, MD
Director/Physician: Andy Lipton; Pamela McShane
Type: Adult Care
Visit
Massachusetts
Boston Children’s Hospital
Location: Boston, MA
Director/Physician: Kenan Haver; Benjamin Raby
Type: Pediatric Care
Visit
Michigan
CS Mott Children’s Hospital / University of Michigan Health
Location: Ann Arbor, MI
Director/Physician: Thomas Saba (Pediatric Care); Shijing Jia (Adult Care)
Type: Pediatric Care, Adult Care
Mott Pediatric Care • UM Adult Care
Minnesota
Children’s Hospital of Minnesota
Location: Minneapolis, MN
Director/Physician: Anne Griffiths
Type: Pediatric Care
Visit
Mayo Clinic Minnesota
Location: Rochester, MN
Director/Physician: Manuel Arteta (Pediatric Care); Sarah Chalmers (Adult Care)
Type: Pediatric Care, Adult Care
Mayo Pediatric Care • Mayo Adult Care
Electron Microscopy (EM) Lab Specialty
Missouri
St. Louis Children’s Hospital / WashU Medicine
Location: St. Louis, MO
Director/Physician: Amjad Horani; Steve Brennan (Pediatric Care); Shail Mehta (Adult Care)
Type: Pediatric Care, Adult Care
St. Louis Pediatric Care • WashU Adult Care
North Carolina
University of North Carolina at Chapel Hill
Location: Chapel Hill, NC
Director/Physician: Stephanie Davis; Tom Ferkol; Tim Vece (Pediatric Care); Ken Olivier; Leigh Anne Daniels (Adult Care)
Type: Pediatric Care, Adult Care
UNC Pediatric Care • UNC Adult Care
New York
Maria Fareri Children’s Hospital / New York Medical College
Location: Valhalla, NY
Director/Physician: Sankaran Krishnan (Pediatric Care); Lisa Paul (Adult Care)
Type: Pediatric Care, Adult Care
Maria Fareri Pediatric Care • NYMC Adult Care
Columbia University Medical Center
Location: New York, NY
Director/Physician: Aliva De (Pediatric Care); Claire Keating (Adult Care)
Type: Pediatric Care, Adult Care
Columbia Pediatric Care • Columbia Adult Care
NYU Langone Medical Center
Location: New York, NY
Director/Physician: Robert Giusti; Eric Hamberger (Pediatric Care); Rany Condos; Ashwin Basavaraj (Adult Care)
Type: Pediatric Care, Adult Care
NYU Pediatric Care • NYU Adult Care
Ohio
Nationwide Children’s Hospital
Location: Columbus, OH
Director/Physician: Melissa B. Holtzlander; Kavitha Kotha
Type: Pediatric Care
Visit
Cincinnati Children’s / University of Cincinnati Health
Location: Cincinnati, OH
Director/Physician: Cassie Shipp (Pediatric Care); Veronica Indihar (Adult Care)
Type: Pediatric Care, Adult Care
Cincinnati Pediatric Care • UC Adult Care
UH Rainbow Babies & Children’s Hospital / University Hospitals
Location: Cleveland, OH
Director/Physician: Olivia Giddings
Type: Pediatric Care, Adult Care
Visit
Pennsylvania
Children’s Hospital of Philadelphia / Penn Medicine
Location: Philadelphia, PA
Director/Physician: Maureen Josephson; Natalie Shilo (Pediatric Care); Daniel Dorgan (Adult Care)
Type: Pediatric Care, Adult Care
CHOP Pediatric Care • Penn Adult Care
Puerto Rico
Ponce University Puerto Rico
Location: Cayey, Puerto Rico
Director/Physician: Wilfredo De Jesús-Rojas
Type: Pediatric Care, Adult Care
Visit
Tennessee
Vanderbilt Children’s Hospital / Vanderbilt Health
Location: Nashville, TN
Director/Physician: Michael O’Connor (Pediatric Care); James Tolle (Adult Care)
Type: Pediatric Care, Adult Care
Vanderbilt Pediatric Care • Vanderbilt Adult Care
Texas
Texas Children’s Hospital
Location: Houston, TX
Director/Physician: Shailendra Das
Type: Pediatric Care
Visit
UT Health Hermann Houston
Location: Houston, TX
Director/Physician: Ricardo Mosquera
Type: Pediatric Care
Visit
UT Southwestern Medical Center / Dallas Children’s Health
Location: Dallas, TX
Director/Physician: Yadira Rivera Sanchez; Tanya Martinez Fernandez (Pediatric Care); Raksha Jain (Adult Care)
Type: Pediatric Care, Adult Care
UTSW Pediatric Care • UTSW Adult Care
Virginia
University of Virginia
Location: Charlottesville, VA
Director/Physician: Andrea Garrod (Pediatric Care); Dana Albon (Adult Care)
Type: Pediatric Care, Adult Care
UVA Pediatric Care • UVA Adult Care
Washington
Seattle Children’s Hospital
Location: Seattle, WA
Director/Physician: Margaret Rosenfield
Type: Pediatric Care
Visit
Canada
British Columbia Children’s Hospital
Location: Vancouver, BC, Canada
Director/Physician: Sharon Dell
Type: Pediatric Care
Visit
Hospital for Sick Children
Location: Toronto, Ontario, Canada
Director/Physician: Fiona Kritzinger
Type: Pediatric Care
Visit
McGill University Health Centre
Location: Montreal, QC, Canada
Director/Physician: Adam Shapiro
Type: Pediatric Care, Adult Care
Visit